Differences between Patient and Surgeon Interests in Musculoskeletal Research

Abstract

Background: There is a growing interest in engaging patients in research priorities and project design. This studycompared topics patients and surgeons would like to address in upper extremity musculoskeletal research.Methods: We invited patients on social media-based support groups for specific musculoskeletal illnesses andmembers of the Science Of Variation Group to indicate the three most important research topics by disease. Wealso measured agreement that patients should participate in research on a five-point Likert scale. We categorizedresearch priorities into the following categories: treatment, cause and natural history, recovery, diagnostic process,and economic impact. Bivariate analysis was used to detect differences between surgeons and patient responses.Multivariable regression models sought factors associated with agreement whether patients should participate inresearch. Sixty-two surgeons and 350 patients completed the survey, who had one of the following musculoskeletalillnesses: Dupuytren contracture, adhesive capsulitis, Kienböck disease, complex regional pain syndrome, rotator cufftendinopathy, carpal- or cubital tunnel syndrome, and rheumatoid arthritis.Results: Both patients and surgeons were most interested in research into treatment options. There were fewdifferences in the number of responses per category between surgeons and patients. Patients and surgeons with feweryears of practice agree most with involving patients in research.Conclusion: Patients and surgeons prioritize research about treatment. Surgeons were more interested in naturalhistory of disease and surgical techniques, while patients were more interested in alleviation of pain.Level of evidence: I